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Zorro

(17,604 posts)
Thu Jun 19, 2025, 09:41 AM Thursday

Florida contractor cuts nursing care for 100 medically fragile children

In some cases, denial of care by Sunshine Health goes against medical recommendation.

Melissa Decampos barely had time to grieve when her daughter took her life eight years ago.

Someone had to care for her granddaughter, Toriana Hayes, who has Wolf-Hirschhorn syndrome. The rare genetic disorder left her developmentally delayed and at risk from potentially deadly seizures.

Toriana is 19 but looks about 10. She needs medication every three hours to limit seizures and for painful gas. She cannot support her weight and expresses pain or distress by banging her hand repeatedly against her ear, which has left her mostly deaf.

Her food, drink and medicine must be given through a tube inserted into her stomach. At night, she wears a respiratory device to treat sleep apnea.

Unable to be left alone, she’s had 24-hour home nursing through Medicaid her entire life, Decampos said.

But in March, Sunshine Health, the company contracted to run Florida’s program for medically fragile children, determined that level of care was “not medically necessary.” It reduced Toriana’s nursing schedule by half.

https://www.tampabay.com/news/health/2025/06/19/florida-disabled-medicaid-denial-sunshine-health/

Those execs gotta earn their bonuses, ya know...
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Florida contractor cuts nursing care for 100 medically fragile children (Original Post) Zorro Thursday OP
Creating more Luigis every day... sop Thursday #1
Billionaires want their tax cuts. Irish_Dem Thursday #2
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