General Discussion
In reply to the discussion: Dare I say something nice about my medical insurance company? [View all]NNadir
(38,186 posts)I may have been approved for evolocumab on a cost/benefit basis, that my elevated risk of stroke or heart failure may outweigh the costs of trying to prevent these since I decline to take statins anymore.
I stopped taking statins, after 20 or 30 years because I developed extreme muscular sensitivity.
In the past weeks, I have been evaluated for heart surgery, and for the time being, I'm home free but my reading of the literature suggests that it is quite possible my case will worsen. I'm not afraid of dying, since I will die one way or the other, as everyone will, but I would rather not be severely incapacitated.
I didn't ask for evolocumab; my doctor suggested it and submitted his reasons for the recommendation to UHC. I'd rather that medical cases were decided on merit rather than money, but it's not my call.
I note that I consider that my condition may have been exacerbated by my inability to get antibiotics fast enough to cure a case of strep I had in my twenties, in part because I had no car and no one to take me to a doctor. My poverty at the time played a role in this. This probably triggered, owing to my genome represented by my family history, an autoimmune disease known as rheumatic fever. It appears that a peptide sequence connected with immune response to streptococcus A matches a sequence in my particular HLA form, DRB1 DR5 on the 6th chromosome. For now I'm OK, and evolocumab may extend the time I live disease free.
It sounds to me that it is quite possible I'm better off financially than you may be, and quite possibly it plays a role in the difference in our access.
There seems to be some literature suggesting that statins may have neurological effects; the more I learn about lipidomics, the more I understand that lipids play a huge role in neurochemistry. Statins are drugs operating on the lipid system/
However, they are prophylactic drugs in general, not really treatments. They prevent disease; they do not cure it. They are fairly ineffective for LDH's, and it is LDH's that are involved with my condition, aortic stenosis.
It's very clear in these times there is an unjust discrepancy between those having financial resources and those lacking them.
None of this, of course, precludes me from offering praise for the interaction described. In my case, they did good, and again, I do not feel precluded from stating as much.
I am on record supporting Medicare for all, not just for me.
I know I am privileged and I regret that others do not have access to what I have. I regret you are unsatisfied.
I wish you good health. During open enrollment, you should shop around, at least for as long as Medicare exists at all. If it disappears, and it may owing to the orange pedophile, I will be screwed.