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NNadir

(38,186 posts)
25. I am not here to say that every case is praiseworthy. However, it is true that my case has some risk of fatality.
Sat Apr 11, 2026, 04:20 PM
Saturday

I may have been approved for evolocumab on a cost/benefit basis, that my elevated risk of stroke or heart failure may outweigh the costs of trying to prevent these since I decline to take statins anymore.

I stopped taking statins, after 20 or 30 years because I developed extreme muscular sensitivity.

In the past weeks, I have been evaluated for heart surgery, and for the time being, I'm home free but my reading of the literature suggests that it is quite possible my case will worsen. I'm not afraid of dying, since I will die one way or the other, as everyone will, but I would rather not be severely incapacitated.

I didn't ask for evolocumab; my doctor suggested it and submitted his reasons for the recommendation to UHC. I'd rather that medical cases were decided on merit rather than money, but it's not my call.

I note that I consider that my condition may have been exacerbated by my inability to get antibiotics fast enough to cure a case of strep I had in my twenties, in part because I had no car and no one to take me to a doctor. My poverty at the time played a role in this. This probably triggered, owing to my genome represented by my family history, an autoimmune disease known as rheumatic fever. It appears that a peptide sequence connected with immune response to streptococcus A matches a sequence in my particular HLA form, DRB1 DR5 on the 6th chromosome. For now I'm OK, and evolocumab may extend the time I live disease free.

It sounds to me that it is quite possible I'm better off financially than you may be, and quite possibly it plays a role in the difference in our access.

There seems to be some literature suggesting that statins may have neurological effects; the more I learn about lipidomics, the more I understand that lipids play a huge role in neurochemistry. Statins are drugs operating on the lipid system/

However, they are prophylactic drugs in general, not really treatments. They prevent disease; they do not cure it. They are fairly ineffective for LDH's, and it is LDH's that are involved with my condition, aortic stenosis.

It's very clear in these times there is an unjust discrepancy between those having financial resources and those lacking them.

None of this, of course, precludes me from offering praise for the interaction described. In my case, they did good, and again, I do not feel precluded from stating as much.

I am on record supporting Medicare for all, not just for me.

I know I am privileged and I regret that others do not have access to what I have. I regret you are unsatisfied.

I wish you good health. During open enrollment, you should shop around, at least for as long as Medicare exists at all. If it disappears, and it may owing to the orange pedophile, I will be screwed.

Recommendations

0 members have recommended this reply (displayed in chronological order):

Good for you giving credit where it is due. So many times we get screwed by crooks business Walleye Saturday #1
I like mine as well. RandySF Saturday #2
It is good to hear the good anecdotes as well. Not sure this represents change, but I hope... hlthe2b Saturday #3
Meanwhile ... my Mom's insurance company is forcing her to buy Xarelto in $200 lots. eppur_se_muova Saturday #4
I am still under private insurance and my Xarelto is cheap TBF Saturday #6
I've seen drug ads on TV mention those cards, but if I had ever seen one re Xarelto I'm sure I would have noticed ! eppur_se_muova Saturday #9
Great advice. I have knownn others who did this successfully. twodogsbarking Saturday #11
I'm pretty sure folks on Medicare wouldn't be included in their TBF Saturday #15
Direct contact with the manufacturer is worth a shot. Learn all you can. Don't give up. twodogsbarking Saturday #21
That sounds as if it's on the manufacturer. LisaM Saturday #22
What about Part D? RussBLib Saturday #5
Humana - and specifically CenterWell mail order pharmacy - is the worst. Ms. Toad Saturday #24
I have to admit genxlib Saturday #7
I've had good luck w/their Optum program, also, TBF Saturday #8
I'm also very happy with Optum Freddie Saturday #27
Medicare Part C is Medicare Advantage plan. Medicare A and B are original Medicare and Supplemental Nanjeanne Saturday #10
It's actually nice to hear something good for a change radical noodle Saturday #12
But edhopper Saturday #13
I was prescribed a blood thinner after 2 afib events. Zackzzzz Saturday #14
Your talents are being wasted Be The Light Saturday #16
Friend on regular Medicare DownriverDem Saturday #17
My Rebl2 Saturday #18
I like Kaiser AncientOfDays Saturday #19
My provider is also United Health. ananda Saturday #20
I disagree with you as I am UHC and am forced to take statins which wreck my short term memory Stargazer99 Saturday #23
I am not here to say that every case is praiseworthy. However, it is true that my case has some risk of fatality. NNadir Saturday #25
Im a firm believer in giving credit where it's due xmas74 Saturday #26
Nice to hear your story and see that insurance companies can do good by their customers. In contacting you, they...... FadedMullet Saturday #28
It is an unfortunate reality that the rigorous educations that pharmacists have is in most cases, underutilized. NNadir Saturday #30
NN - Just curious. How does "small molecule" fit into a discussion about picking an appropriate or effective Rx ? FadedMullet Saturday #29
It doesn't, but I made a distinction between the two drugs mentioned in that sentence which were large molecules. NNadir Saturday #32
they are under a microscope right now Skittles Saturday #31
Give Credit To The Woman, Not The Depraved Corporate Motherfuckers Running United. MayReasonRule 13 hrs ago #33
Thank you for sharing your thoughts. NNadir 12 hrs ago #34
No Offense To You At All Y'all... I'm Just Pointing Out That It's The Individual That Made This Call, Not Corporate MayReasonRule 12 hrs ago #35
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