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Desert grandma

(1,076 posts)
Sat Feb 7, 2026, 04:26 AM Feb 7

My heart is breaking.. [View all]

Last edited Mon Feb 9, 2026, 12:25 PM - Edit history (1)

Dear DU friends, I have not posted much the past month or so because my husband who was doing so well on his skin cancer (squamous cell carcinoma) treated by immunotherapy, is currently at the VA hospital in ICU. The treatment had some uncommon side effects which impacted his kidney function. His creatinine level upon admission was 3.6. Normal is .7-.9. The treatment is steroids, beginning with heavy doses and tapering off. His numbers are improving, as the level today is 2.4. The numbers are headed in the right direction, but they seem to be causing great agitation and even combative behavior. The biggest concern is his agitation as he was trying to pull out IVs. They have those mitts on him that look like boxing gloves. He hates it and keeps trying to get them off. He told me quite clearly today.."Get these off!". He is hard of hearing and the medical providers seem to think his cognitive function has also deteriorated because in the past he was diagnosed with mild cognitive dementia. This morning he did respond to the doctor and told her his name. The medical team is going to assess him on Monday to gauge any improvement. They want to move him into in patient hospice perhaps in the short term to continue the tapering off of the steroid. He is not eating or drinking fluids so they are giving him fluids via IV that contain potassium, magnesium, glucose and other nutrients. He needs to be able to eat and drink fluids. I am praying that he will be able to recover enough that he can come home. He is the love of my life and we celebrated our 51st wedding anniversary last November. He is an amazing man who retired as an engineer from Honeywell years ago and went back to school to get an MS in Social Work and an LCSW certification. He then worked for 8 more years helping homeless vets. He is a wonderful father and I cannot imagine my life without him. Please send caring thoughts and prayers if you are so inclined. Two weeks ago he was in the kitchen talking and laughing with his sister. I am overwhelmed trying to process this
sudden crisis.

UPDATE! My husbands's lab results appear to be trending in his favor. They are titrating the steroids down. My family is putting pressure on me to put a DNR in place. I feel that as long as his labs indicate healing is taking place, I do not want to do that. I am in the process of attempting to change his doctor in the ICU. I do not trust this doctor

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My heart is breaking.. [View all] Desert grandma Feb 7 OP
Laying here listening to Mr Maru breathe, I can't even imagine your suffering Maru Kitteh Feb 7 #1
I am so sorry this is happening, you both are in my thoughts irisblue Feb 7 #2
Healing vibes on the way to both of you. SheltieLover Feb 7 #3
I'm praying for both of you Desert Grandma JMCKUSICK Feb 7 #4
Please accept my deepest sympathy for what you are experiencing. NNadir Feb 7 #5
Sending you hugs and positive thoughts. alwaysinasnit Feb 7 #6
I'm glad you find comfort in reaching out here at DU. badhair77 Feb 7 #7
Good positive thoughts & prayers coming your way 🙏 Raine Feb 7 #8
My dear Desert Grandma, holding you and your husband in love niyad Feb 7 #9
Sending you both peace and strength. kairos12 Feb 7 #10
I am so sorry you are going through this. Silver Gaia Feb 7 #11
I sympathize. My husband and I have had a long run together. calimary Feb 7 #12
💛 🧡 ❤️ Donkees Feb 7 #13
Something to ask the doctors Hannahcares Feb 7 #14
Sending good vibes malaise Feb 7 #15
Sending healing vibes and thoughts of hope purr-rat beauty Feb 7 #16
Sending hugs and strength democrank Feb 7 #17
I am so sorry. mgardener Feb 7 #18
I am sending healing vibes your way. OldBaldy1701E Feb 7 #19
I am so sorry that you and your husband are going through this. brer cat Feb 7 #20
(((gentle hug)))🫂 mwmisses4289 Feb 7 #21
I'm so sorry...please try to stay as positive as you can. LuckyCharms Feb 7 #22
Dearest Desert Grandma, lark Feb 7 #23
Vibes to him and you and your loved ones. applegrove Feb 7 #24
Sending prayers for you, he, and justaprogressive Feb 7 #25
I am so sorry. 😞 Arazi Feb 7 #26
Oh Desert Grandma... CousinIT Feb 7 #27
please know markie Feb 7 #28
I'm so sorry. Praying he improves quickly and will be able to return home soon. Kidney problems highplainsdem Feb 7 #29
Hugs to you, and prayers and healing vibes for your husband Jilly_in_VA Feb 7 #30
I am so sorry this is happening Bettie Feb 7 #31
Sending my healing vibes to YOU and your Husband!! bluestarone Feb 7 #32
Brutal Cirsium Feb 7 #33
Sending prayers for you both. LoisB Feb 7 #34
OMGOSH Desert Grandma, prayers, positive vibes, positive energy love and hugs. a kennedy Feb 7 #35
Wishing you the best at this difficult time (may you have many more precious moments together). waterwatcher123 Feb 7 #36
Don't give up! LatteLady Feb 7 #37
I prayed for you both. Joinfortmill Feb 7 #38
Please don't forget to care for yourself JoseBalow Feb 7 #39
I am so sorry 🙏🙏 I lost my husband who was my best friend 5 years ago. I miss him every day. Sending hugs and prayers TommieMommy Feb 7 #40
That's awful Wicked Blue Feb 7 #41
Sending healing vibes KT2000 Feb 7 #42
Wishing you both comfort and recovery mahina Feb 7 #43
So sorry to hear this... haele Feb 7 #44
He is lucky to have you, and you, him. Festivito Feb 7 #45
Steroids ms.pamela Feb 7 #46
Sending good vibes to you & your husband MustLoveBeagles Feb 7 #47
Keep up the fight.........NC popsdenver Feb 7 #48
Just this... Marie Marie Feb 7 #49
I am so very sorry, Desert grandma Grim Chieftain Feb 7 #50
Sending prayers cate94 Feb 7 #51
my virtual arms are around you, Desert grandma UpInArms Feb 7 #52
You are in our thoughts and we're rooting for you and your husband! SouthernOregonDem Feb 7 #53
Wishing you and your husband B.See Feb 7 #54
Prayers and positive vibes coming your way. Doodles Feb 7 #55
I'm sending love to both of you. Hope22 Feb 7 #56
Sending healing vibes and hugs to you. virgdem Feb 7 #57
Kidney infection can cause dementia symptoms - be sure they check for this. Liberty Belle Feb 7 #58
I am sorry for this Desert grandma..... peacebuzzard Feb 7 #59
Life can be so hard DownriverDem Feb 7 #60
I stopped and said a prayer for your husband and you. hamsterjill Feb 7 #61
I'm so sorry. Beacool Feb 7 #62
51 YEARS! Lemon Lyman Feb 7 #63
So sorry womanofthehills Feb 7 #64
I am so sorry for what you and your beloved husband are going through. HeartsCanHope Feb 7 #65
What you are dealing with is so hard, I know from experience with my wonderful husband. My heart goes out to you. MLAA Feb 8 #66
Latte Lady offers wise advice. summer_in_TX Feb 8 #67
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