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progressoid

(53,599 posts)
68. HIPAA Privacy Rule protections continue for 50 years after a person's death
Sun Jul 5, 2026, 10:10 PM
Sunday
https://www.hhs.gov/hipaa/for-professionals/privacy/guidance/health-information-of-deceased-individuals/index.html

Background

The HIPAA Privacy Rule protects the individually identifiable health information about a decedent for 50 years following the date of death of the individual. This period of protection for decedent health information balances the privacy interests of surviving relatives and other individuals with a relationship to the decedent, with the need for archivists, biographers, historians, and others to access old or ancient records on deceased individuals for historical purposes. During the 50-year period of protection, the personal representative of the decedent (i.e., the person under applicable law with authority to act on behalf of the decedent or the decedent’s estate) has the ability to exercise the rights under the Privacy Rule with regard to the decedent’s health information, such as authorizing certain uses and disclosures of, and gaining access to, the information. With respect to family members or other persons involved in the individual’s health care or payment for care prior to the individual’s death, but who are not personal representatives, the Privacy Rule permits a covered entity to disclose the relevant protected health information of the decedent to such persons, unless doing so is inconsistent with any prior expressed preference of the deceased individual that is known to the covered entity.

How the Rule Works

The HIPAA Privacy Rule applies to the individually identifiable health information of a decedent for 50 years following the date of death of the individual. The Rule explicitly excludes from the definition of “protected health information” individually identifiable health information regarding a person who has been deceased for more than 50 years. See paragraph (2)(iv) of the definition of “protected health information” at § 160.103. Thus, for example, a HIPAA covered entity that maintains health or medical records, correspondence files, physician diaries and casebooks, or photograph collections that contain identifiable health information on individuals who have been deceased for more than 50 years may use or disclose the information without regard to the Privacy Rule because the information is not considered protected health information.

During the 50-year period of protection, the Privacy Rule generally protects a decedent’s health information to the same extent the Rule protects the health information of living individuals but does include a number of special disclosure provisions relevant to deceased individuals. These include provisions that permit a covered entity to disclose a decedent’s health information: (1) to alert law enforcement to the death of the individual, when there is a suspicion that death resulted from criminal conduct (§ 164.512(f)(4)); (2) to coroners or medical examiners and funeral directors (§ 164.512(g)); (3) for research that is solely on the protected health information of decedents (§ 164.512(i)(1)(iii)); and (4) to organ procurement organizations or other entities engaged in the procurement, banking, or transplantation of cadaveric organs, eyes, or tissue for the purpose of facilitating organ, eye, or tissue donation and transplantation (§ 164.512(h)). In addition, the Privacy Rule permits a covered entity to disclose protected health information about a decedent to a family member, or other person who was involved in the individual’s health care or payment for care prior to the individual’s death, unless doing so is inconsistent with any prior expressed preference of the deceased individual that is known to the covered entity. This may include disclosures to spouses, parents, children, domestic partners, other relatives, or friends of the decedent, provided the information disclosed is limited to that which is relevant to the person’s involvement in the decedent’s care or payment for care. See 45 CFR 164.510(b)(5). For uses or disclosures of a decedent’s health information not otherwise permitted by the Privacy Rule, a covered entity must obtain a written HIPAA authorization from a personal representative of the decedent who can authorize the disclosure. A decedent’s personal representative is an executor, administrator, or other person who has authority under applicable State or other law to act on behalf of the decedent or the decedent’s estate. See 45 CFR 164.502(g)(4), as well as guidance on personal representatives available at: http://www.hhs.gov/ocr/privacy/hipaa/understanding/coveredentities/personalreps.html, for more information.

Recommendations

4 members have recommended this reply (displayed in chronological order):

I can only hope that the Gravedigger Of American Democracy hears the sound of shovels . . . hatrack Sunday #1
LOVE how you put that! calimary Yesterday #73
For all we know, he might be already dead, leaving us wnylib Sunday #2
I have someone in my family right now Tree Lady Sunday #19
That's, what I thought initially and it could be true. wnylib Sunday #37
Something like that couldn't be kept secret. cab67 Sunday #60
Those people need their jobs and could be prosecuted for violating HIPPA Attilatheblond Sunday #64
Does HIPAA apply to dead people? LeftInTX Sunday #66
HIPAA Privacy Rule protections continue for 50 years after a person's death progressoid Sunday #68
I had to jump thru some hoops to get certified copies of my husband's death certificate so I could take care of details Attilatheblond 19 hrs ago #83
They'd be prosecuted only if they can be identified. cab67 Yesterday #81
He could well be on life support popsdenver Sunday #46
That seems most likely. Dulcinea Sunday #53
Yup...unconscious when they hauled him out of the house Bengus81 Sunday #59
Staffers wanna keep their jobs? Attilatheblond Sunday #62
I think she doesn't need them popsdenver Yesterday #78
Her perks include influence with US government officials which can be rewardeing to the SHIPPING COMPANY Attilatheblond 19 hrs ago #82
Maybe they've already quick--frozen him and will resurrect only when a vote is needed. erronis Sunday #45
They'll put a tarp over him. (nt) Pinback Sunday #69
Then someone needs to get near to him and obtain the proof. harumph Sunday #3
A "Carhartt" riot might do the trick Ponietz Sunday #18
Maybe the Governor could casually ask around. nt allegorical oracle Sunday #39
There should be some kind of requirement for weekly proof of life SSJVegeta Sunday #4
Rules are only for Democrats............ Bengus81 Sunday #61
And staffers are paid while doing whatever without proper chain of command & responsibility Attilatheblond Sunday #63
So, an election before the 3 months is a good thing in Kentucky?? Tetrachloride Sunday #5
possibly. in general, low turnout elections favor the most motivated. RandomNumbers Sunday #25
Is there any way to force the issue? No reason to play nice with him at this point. Crunchy Frog Sunday #6
Actually it is better for us if they pull this off and keep it hidden InstantGratification Sunday #31
Between the R Senators who have lost primaries or who are not running for reelection ToxMarz Sunday #34
It's similar to the movie Dave. Sector 001 Sunday #36
Where can you find death certificates? cpamomfromtexas Sunday #7
One cannot, unless one is permitted by or is a member of immediate family. ColoringFool Sunday #12
That is not true Wifes husband Sunday #24
It likely varies by state. In Florida, when I tried to look at the death certificate allegorical oracle Sunday #40
Death certficates contain private info. (Cause of death, address, spousal address) Death index does not. LeftInTX Sunday #67
Oh, yes, it is. Unless you know of an exception? ColoringFool Sunday #56
Where's the MSM coverage of Turtle's condition? SergeStorms Sunday #8
Hitting a parked car results in a police report which is likely public domain Attilatheblond 19 hrs ago #84
Either way you look at it its the_liberal_grandpa Sunday #9
Can't recall whether Thune is empowered to permit proxy votes. Anybody? nt allegorical oracle Sunday #41
no rampartd Sunday #52
This doesn't make sense newdeal2 Sunday #10
I don't think this is to the Republicans or Kentucky's benefit unless he is alive karynnj Sunday #11
I don't understand why or why not having a special election makes any difference. Fil1957 Sunday #13
The Kentucky GOP has a strange law that only a republican can be named to replace McConnel LetMyPeopleVote Sunday #14
I forgot about that one... IthinkThereforeIAM Sunday #26
That law was changed in 2024; special election is now required. Callie1979 Sunday #35
Oh, what a shame! DFW Sunday #49
Odd how it ws changed when a Dem won the Gov office. Callie1979 Yesterday #74
Republicans pull schemes like that nationwide. DFW Yesterday #80
I was thinking about that. But we could use Republican-style tactics against them, as well. DFW Sunday #48
Perhaps the governor should bring some flowers and Capt. America Sunday #15
That sounds very plausible. Martin68 Sunday #16
The sooner the better! OGBuzz Sunday #17
His wife, Elaine has close ties to the highest echelons of the Chinese government dlk Sunday #20
She just returned from a visit to China. Thought the timing was odd -- it could've allegorical oracle Sunday #42
Or maybe she heard he doesn't have much time left... ShazzieB Sunday #44
Yes we've been speculating that he might have kicked the bucket already FakeNoose Sunday #21
Ky changed the rules. The governor has no ability to pick anyone. karynnj Sunday #30
This doesn't make sense, to me mercuryblues Sunday #22
Just more GOP stupidity. nt Callie1979 Sunday #29
There is something odd about this. mercuryblues Sunday #38
Turns out they changed the law in '24 to require a special election. Callie1979 Yesterday #75
But the next election is now 4 months away. hedda_foil Sunday #23
Not the first time this has happened. Wont be the last. Callie1979 Sunday #27
In the meantime... Gaytano70 Sunday #28
Zombie Mitch as worthless dead as alive Johonny Sunday #32
" A cheater even on his death bed." C Moon Sunday #33
That IS a good epitaph. calimary Sunday #57
Excellent catch. R's just have to keep the body away from a corner for 3 more weeks 31j20b3 Sunday #43
Brain dead corpse in one person luxury hospital room, tax dollars draining away dave99 Sunday #47
Maybe he just needs flipped over. twodogsbarking Sunday #50
Perhaps He Can Buy a Scrap of Integrity on the Open Market The Roux Comes First Sunday #51
I dont think he will make it to August 9th.nt. drray23 Sunday #54
They found him unresponsive and had to do CPR, and he is now in a coma. SunSeeker Yesterday #72
I can just picture him sitting next to a pool sipping on formaldehyde cocktails. nt ImNotGod Sunday #55
Oh FFS Blue Owl Sunday #58
One thing for certain dlk Sunday #65
If McConnell is still alive, he can't speak Akakoji Yesterday #70
3 months before an election... AdamGG Yesterday #71
When Strom Thurmond was circling the drain The Wizard Yesterday #76
Spot-on, hatrack! McConnell has indeed been... BH liberal Yesterday #77
Well, that makes zero sense. NoRethugFriends Yesterday #79
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